Pam Halter
Writing Editing Serving

Parents Blog

The Dreaded Medication Change
3/4/2014 12:49:56 PM by: pam

I hate hearing the words, "medication change." The doctor may as well say, "I think you don't have enough to deal with, so let's make your life a little harder this week." But Anna continues to have seizures, so how I can I argue with trying something else? I can't do nothing, right?

Last week, we had a neurology check up and Dr. Lisa thought we should try to increase Anna's vimpat in the morning. Just by one pill.

Okay.

The first day, after an hour of receiving the new medication, Anna's tremors increased, her balance was so bad, she couldn't walk or even sit up. She would try, but fall over or fall down. She didn't eat breakfast. She didn't play with her beloved blocks. She took a nap. By the time the bus arrived, I was able to walk her down the sidewalk, but she pretty much did nothing at her program, either.

By dinnertime, she was back to normal, even though she had a few seizures. The second day brought the same reaction, except when she can home from program, she was sick to her stomach. And we had an increase in seizure activity. I know there's a transition time, so I was determined to stick with it for a week.

The third day was the same, although she wasn't sick.

The fourth day started off the same, but this day we saw 13 big seizures and 1 head drop. Daryl and I said enough is enough. We did not give her the increase of vimpat the fifth day and she's been just fine for three days. I'll be calling the doc this afternoon.

During this time, I begged God to intervene and I was reminded of a similar situation years ago, when I was begging for the seizures to stop. You may have heard me tell the story before.  Now, I don't hear God's voice in an audible way. He speaks more to my heart and mind. The words just appear and I know they're from Him.  Know what I mean? Anyway, I was praying and God said, "I am able to heal your daughter. But if I choose not to, will you still love me?"

Wow.

What do you say to that? Do I love God for what He does for me or do I love Him for Himself? That's the million dollar question, I guess. And I have to answer, "Yes, Lord, I love you no matter what."

Do I still pray for Anna's healing? Of course. I'm her mommy and I can do no less. But I'm thankful for the brain God has given me to be able to reason out the things I should or should not be doing with Anna. So, bring on the medication changes. I'll see how they work and decide what to do with them.


Comments

Tammie From At 3/4/2014 1:23:54 PM

It was hard to watch Anna through that time, she was not the same happy girl we know and love:(. I understand the need to change meds. I am just happy to have the chatty happy girl I k ow and love back without the tremors and lack of interest in anything. ❤❤❤

Lori Hynson From Phoenixville PA At 3/4/2014 1:22:37 PM

You're right, Pam. Doctors may try their best, but you know your daughter best. You have to use common sense and momma sense when it comes to treatment. God bless!

Previous Posts

The Power of Doritos
5/7/2018 12:00:00 PM  by: pam

Yay For Friends!
1/9/2018 3:15:00 PM  by: pam

Show You!
9/11/2017 12:58:00 PM  by: pam

Happy? 26th Birthday, Anna
5/15/2017 7:37:00 AM  by: pam

Re-grouping
3/14/2017 8:10:00 AM  by: pam

We can relate!
9/1/2016 8:00:00 AM  by: pam

A Little Fall Fun
10/18/2015 8:04:11 AM  by: pam

Going Commando
10/5/2015 6:37:04 PM  by: pam

So Behind
9/22/2015 8:42:33 AM  by: pam

Stares and Storytime
4/12/2015 7:12:46 AM  by: pam

Big Big Changes
3/27/2015 9:12:27 AM  by: pam

Blog Post on Autism
9/22/2014 7:30:14 AM  by: pam

The Power of Pets
9/12/2014 4:21:44 PM  by: pam

Depression's Demands
8/15/2014 2:19:26 PM  by: pam

Do We or Don't We?
8/4/2014 12:00:01 AM  by: pam

Falling Down
6/22/2014 1:36:52 PM  by: pam

Research Study
5/23/2014 12:48:08 PM  by: pam

Who goes? Who stays?
5/19/2014 12:11:51 PM  by: pam

Being Thankful
4/25/2014 7:37:26 AM  by: pam

Excellent Article
4/7/2014 7:03:09 AM  by: pam

Jury Duty and Holland
3/27/2014 7:36:35 AM  by: pam

I Confess
3/17/2014 8:11:55 AM  by: pam

The Dreaded Medication Change
3/4/2014 12:49:56 PM  by: pam

Keeping It Together - part seven
2/24/2014 1:03:18 PM  by: pam

Keeping it Together - part six
2/10/2014 8:20:16 AM  by: pam

A Milestone Day
2/3/2014 8:13:17 AM  by: pam

Keeping it together - part five
1/21/2014 6:43:18 AM  by: pam

Keeping It Together - part four
1/3/2014 7:56:02 AM  by: pam

Keeping it Together - part three
12/16/2013 7:34:46 AM  by: pam

Keeping it Together - part two
12/9/2013 6:30:25 AM  by: pam

Keeping it Together - part one
12/5/2013 8:00:03 AM  by: pam

Catching Up
11/13/2013 8:22:00 AM  by: pam

The Perfect House
10/25/2013 8:06:56 AM  by: pam

Another Mom in the Mix
10/7/2013 3:11:58 PM  by: pam

Grieving the Loss
9/24/2013 8:39:13 AM  by: pam

Great article
9/11/2013 1:06:06 PM  by: pam

This and That
9/9/2013 4:09:18 PM  by: pam

Fun in the ER
8/30/2013 9:17:32 AM  by: pam

Bless me, Anna!
8/14/2013 1:51:41 PM  by: pam

Talk to me, Anna!
8/8/2013 5:04:30 PM  by: pam

God's Will
7/30/2013 3:13:08 PM  by: pam

Update on Anna's bloodwork
7/24/2013 6:31:05 AM  by: pam

Stirring the Cesspool
7/11/2013 6:27:11 AM  by: pam

Vacation and Other Fun Stuff
7/3/2013 5:46:28 AM  by: pam

A Day at the Beach
6/17/2013 8:05:05 AM  by: pam

Anna's Surgery Experience
6/5/2013 12:03:49 PM  by: pam

No Place For Anna
5/26/2013 8:27:52 AM  by: pam

Painful Gifts
5/21/2013 8:56:57 AM  by: pam

Happy 22nd Birthday, Anna!
5/15/2013 6:48:55 AM  by: pam

A Rough Day
5/6/2013 6:18:44 AM  by: pam

Things I've Learned - part five
4/30/2013 8:02:08 AM  by: pam

Things I've Learned - part four
4/22/2013 6:51:41 AM  by: pam

Things I've Learned - part three
4/15/2013 6:14:06 AM  by: pam

Things I've Learned - part two
4/9/2013 7:40:11 AM  by: pam

Interview with Terri Groh
4/5/2013 5:44:08 AM  by: pam

Things I've Learned - part one
4/3/2013 7:55:42 AM  by: pam

The Things People Say - part eight
3/27/2013 6:06:08 AM  by: pam

Comparisons
3/18/2013 8:06:43 AM  by: pam

Why Is It A Blessing?
3/11/2013 6:24:04 AM  by: pam

Tim's Place
3/8/2013 11:57:02 AM  by: pam

New Medication Worries
3/5/2013 6:38:36 AM  by: pam

A Night Out for Anna
2/25/2013 11:29:44 AM  by: pam

Play it again, Sam
2/20/2013 5:47:32 AM  by: pam

Happy Birthday
2/15/2013 5:32:13 AM  by: pam

The Anna Bowl
2/4/2013 8:01:33 AM  by: pam

The Queen of Babble-on
1/30/2013 12:45:36 PM  by: pam

Really, people?
1/25/2013 7:36:11 AM  by: pam

Cold Feet
1/23/2013 7:55:46 AM  by: pam

Hearing God
1/15/2013 6:58:57 AM  by: pam

Running Away
1/10/2013 11:19:00 AM  by: pam

Post-Christmas-Reentry-Syndrome
1/4/2013 6:49:36 AM  by: pam

Emmanuel, God With Us
12/17/2012 6:51:08 AM  by: pam

Take Heart
12/7/2012 4:42:07 AM  by: pam

Jumping in the Leaves
11/27/2012 5:56:16 AM  by: pam

Being Thankful
11/19/2012 7:02:07 AM  by: pam

Patience and Love and Wretchedness
11/13/2012 7:38:47 AM  by: pam

A Typical Halter Vacation
11/8/2012 8:35:45 AM  by: pam

Is This Really My Life?
11/1/2012 5:21:04 AM  by: pam

Frankenstorm
10/27/2012 4:22:45 PM  by: pam

A Small Victory at Anna's Program
10/24/2012 7:21:36 AM  by: pam

Update on the problem at Anna's program
10/22/2012 8:23:51 AM  by: pam

The Fight Goes On
10/19/2012 4:55:06 AM  by: pam

Fighting the Good Fight
10/18/2012 7:01:44 AM  by: pam

Sit down, Anna
10/16/2012 6:44:47 AM  by: pam

The Things People Say - conclusion
10/15/2012 8:32:45 AM  by: pam

The Cloaking Device
10/12/2012 6:22:27 AM  by: pam

The Things People Say - part seven
10/11/2012 5:56:56 AM  by: pam

The Things People Say - part six
10/10/2012 5:35:53 AM  by: pam

The Things People Say - part five
10/9/2012 6:59:06 AM  by: pam

The Things People Say - part four
10/4/2012 6:00:52 AM  by: pam

The Things People Say - part three
10/3/2012 6:09:22 AM  by: pam

The Things People Say - part two
10/2/2012 5:29:13 AM  by: pam

The Things People Say - part one
10/1/2012 7:52:27 AM  by: pam

Godzilla Lives at my House
9/27/2012 6:58:41 AM  by: pam

The Early Bird Gets Eaten
9/26/2012 5:22:30 AM  by: pam

Over and Over Again
9/25/2012 5:15:50 AM  by: pam

What Good Are Seizures?
9/21/2012 11:48:29 AM  by: pam

Why Me?
9/20/2012 8:37:32 AM  by: pam

The Rest of my Life?
9/19/2012 5:47:36 AM  by: pam

Feelings
9/18/2012 1:23:56 PM  by: Pam